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Vijay Mehta
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xx Maya, (CA) 4 y/o needs matching bone marrow
« Thread started on: Dec 12th, 2009, 5:26pm »

http://www.ktla.com/news/landing/ktla-maya-chamberline-donor,0,618986.story

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Will this, 4 year old Maya, get to celebrate her Sweet 16 may be in your hands (or more correctly in your bone marrow.) Please register with National Bone Marrow Program.Let there be a bone marrow drive at every Desi event.
Giving the gift of life is the highest act of spirituality.

An appeal to every desi who is in mix marriages. Please consider preserving cord blood or donating the cord blood. Finding a matching bone marrow is hard for Asian but it is far harder when parents are from vastly different background - Vijay Mehta


Little Girl Desperately Needs Bone Marrow Donor
KTLA News
10:12 PM PST, December 5, 2009

Mina and Sam Chamberlin talk with their daughter, Maya, who needs a bone marrow transplant. "I don't think any kid, or adult, should have to die because there isn't a donor." (Los Angeles Times / November 23, 2009)

KTLA: 4-year-old Desperately Needs Bone Marrow Donor Video
LOS ANGELES-- The parents of a 4 year old diagnosed with a rare and deadly blood disorder are desperately searching for bone marrow donor to save their little girl's life.

Last September 4 year old Maya Chamberlin's parents believed she had come down with a flu, but doctors soon diagnosed the little girl with a rare blood disease called HLH.

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Mina and Sam Chamberlin searched for a potential bone marrow donor for their daughter, but the search was made all the more difficult because Maya is of mixed race and needs a donor with a simillar genetic background.

Mina, who is South Asian, and Sam, who has a Caucasian genetic background, never dreamed that their child could ever be put in such potential harm because of her mixed race.

"It was so devastating," said Mina Chamberlin, a medical doctor who lives in Torrance. "The probability of finding a match is very, very low. I can say it would be a miracle if we could find a perfect match."

Inability for racially mixed patients to find matching donors has persisted as a nationwide problem; an estimated 6,000 people search the bone marrow registry every day for a match, and about 4,000 transplants are performed every year.

Of the 7 million potential bone marrow donors nationwide, about 28% are from ethnic minorities, according to the National Marrow Donor Program, a Minneapolis-based nonprofit that provides assistance to transplant patients.

People of mixed race represent only a little more than 3% of volunteers.

Making the search for a donor for Maya is made all the more difficult because blood relatives of the patient aren't able to donate. Experts say finding a volunteer with a matching racial combination can be extremely difficult.

Marrow transplants also have much more stringent requirements than those involving organs.

Organ donations require only a partial match for a successful transplant, according to Jill Kendall, program director for the Be the Match donor registry program at City of Hope hospital in Los Angeles.

"But bone marrow produces the white blood cells which is your immune system. It has to be a very close match if not identical match so your body doesn't reject it."

The Chamberlins are hoping a full-match donor will be found before Maya is forced to go ahead and attempt a partially-matched marrow transplant, which greatly diminishes her chances of successful recovery.

They say 4 year old Maya has been enduring chemotherapy and seemingly endless steroid and seizure medications while waiting for a matching donor.

Initially, Maya's little brother, 2 year old Jaden Chamberlin, was believed to be her best hope for a bone marrow match.

However, doctors said that siblings of patients only have a 25% to 30% chance of being a good match, which just wasn't enough.

"Ideally you want the full match," Mina said. "But her status is urgent, she has a high risk for relapse. Hopefully we can find something by January."

The Chamberlin family and volunteers have held donor drives at various places including temples, churches, restaurants, universities, and any place where large amounts of people gather.

They have yet to find a match for Maya.

For more information on how to potentially donate bone marrow to Maya Chamberlin please visit http://www.caringbridge.org/visit/concentrate

To learn more about bone marrow donation, please visit http://www.bethematch.com, www.marrow.org, and http://a3mhope.org
« Last Edit: Dec 12th, 2009, 5:46pm by Vijay Mehta » User IP Logged

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xx Facebook Campaign for a Placenta or a Person
« Reply #1 on: Mar 3rd, 2010, 2:50pm »

Please copy and send this link

http://www.facebook.com/note.php?note_id=374602780287


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Please post this message on your wall & contact vijayvip@aol.com if you can help!

Will this, 4 year old Maya, get to celebrate her Sweet 16 may be in your hands (or more correctly in your bone marrow.) Please register with National Bone Marrow Program.Let there be a bone marrow drive at every Desi event. If you need any info contact me... "Giving the gift of life is the highest act of spirituality!"

http://vmehta.conforums3.com/index.cgi?board=bone&action=display&num=1260664016&start=0#1260664016

Maya can be saved by a Placenta from 1/2 Caucasian and 1/2 Desi couple. Do you know anyone in this situation?

Since Maya is 1/2 Indian and 1/2 Caucasian it is even harder for her to find the match. One thing that we all need to be cognizant is that Umbilical Cord Blood does not need 6/6 match it can even work great with lesser match.

So if you know any one who is going to deliver soon and the couple is 1/2 Indian and 1/2 caucasian please let me know. May be we can encourage them to donate cord blood - which does not affect the new born at all. But at the same time start off the life of new born baby with great Karma of saving Maya's Life!!!

Giving the Gift of Life is the highest act of Spirituality, regardless of your faith

Milan Shroff wrote: Uncle, can you explain a bit more? How late in the pregnancy can you intervene? I know someone who is due today or tomorrow.

Vijay Uncle Mehta

Thank you Milan

Cord blood is collected once baby is born and cord is ligated. There is a lot of blood still left on placenta side of the baby. As I understand they collect the blood and store it. This blood contains stem cells just like bone marrow in adults. This blood can save life just like bone marrow. Not only that but the cord blood does not need 6/6 match it can work well even with the lesser match.

Donating Cord Blood: This is where you donate your cells and they will use it for anyone who needs it. Check with the hospital if they have facilities to collect and store cord blood. If you wish to donate the cord blood it should cost you nothing.

Here is the list of hospitals that accept cord blood donation

http://www.marrow.org/HELP/Donate_Cord_Blood_Share_Life/How_to_Donate_Cord_Blood/CB_Participating_Hospitals/nmdp_cord_blood_hospitals.pl

Public cord blood banks cover the costs to collect, test and store umbilical cord blood. Because of funding limitations, it is not possible to donate cord blood at every hospital.

If your hospital is not listed
If your hospital is not listed, don't be discouraged; there may be another option for you.
If the list below shows a cord blood bank in your area, you can contact the cord blood bank to ask whether they can still help you donate.
You may be able to donate cord blood through Cryobanks International, which accepts donations from anywhere in the continental United States to be listed on the Be The Match Registry. Call 1 (800) 869-8608 to learn about Cryobanks' eligibility requirements and process or visit their Web site at: www.cryo-intl.com/enroll/donating/.
You can check whether there are other cord blood banks in your area that accept cord blood for public donation. These banks are not part of the NMDP Network of banks and do not list their cord blood units on the NMDP's Be The Match Registry.
You can ask your hospital whether it accepts cord blood donations for research purposes. Research leads to new treatments that can benefit more patients in the future.

Store the cord blood: On the other hand they can also choose to store the cord blood for you for the need in future. Few years ago when I talked to few companies they were charging 1800 dollars to collect and 125 dollar to store per year. It is a smart idea to store the cord blood, specially if you are a mix couple (since it is much harder to find the match). http://www.cordblood.com/cord_blood_faqs/cord_blood.asp?fbid=itZlodQpiu9

If you wish to store the cord blood and the hospital does not have facilities you may contact the outfit above and they will send a collection kit.

Let me know if you have any questions. My strategy is to donate the cord blood, which means if they need it they can use it. But suppose the cord blood was not used and your child suddenly need a matching marrow you can simply use that cord blood.

Let me know if you have any questions.
« Last Edit: Mar 3rd, 2010, 2:54pm by Vijay Mehta » User IP Logged

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xx Maya, (CA) 4 y/o Gets matching bone marrow
« Reply #2 on: Mar 5th, 2010, 5:32pm »

Maya was transfused bone marrow.

Our prayers are for her speedy recovery.

http://www.facebook.com/pages/Jai-Ho-Vijay-Uncle-Mehta/326538871962?v=app_2373072738#!/pages/Jai-Ho-Vijay-Uncle-Mehta/326538871962?v=wall
« Last Edit: Mar 6th, 2010, 10:01am by Vijay Mehta » User IP Logged

Greatest threat to Hindu religion comes from Dhongi Baba - Dada - Didi - Swami etc.
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